Monday, September 13, 2010

So Far So Good...


Ruby's day at the hospital went well. She did not have one of her new seizures yet, but we are hoping she could have one tonight or tomorrow morning. (It is really weird to hope your daughter has a seizure, but we want the doctors to see it so they can help us with med decisions). I left Mark with Ruby at the hospital for the night and I took Charlie home and put him to bed.  He was whipped from playing with his cousin Alex all day. Thanks for watching him Mike and Jess!

We did meet the new pediatric neurologist today. He specializes in working with kids who have epilepsy that has proven to be hard to control. It was nice to have someone new look at her and give us a few ideas for possible treatments we could try. He didn't want to give us a for sure plan until he reads the whole EEG later this week. So for now, we just wait and pray that he has some good ideas for us.

Here are a few shots of Ruby from today..... all wrapped up like a wounded Civil War soldier :)
                                                             A little tired or bored maybe???



Trying to sleep...hard to do in a hospital

4 comments:

Paul Ten Haken said...

Great smiles. We just booked some flights to come out on October 7-10. Going to stay at the Fairfield Inn in Holland. Woo hoo!

Trish said...

awe... she is adorable! I've been praying randomly throughout the day!

kimberly said...

She is so stinkin' cute! Hope she's able to catch up on some sleep today/tonight.

Shadley said...

oh those smiles just melt me. adorable.