Thursday, August 20, 2009

Appointments

It has been a busy week, filled with appointments; I can't believe it's already Thursday! Here is a little run down from our week, if you are interested....

Monday we went to the pediatrician for a shot for Charlie and Ruby's 15 month well child visit. Ruby is growing like she should be; her weight is in the
75th percentile and her height is in the 25th :) Some of that weight I sure is left over from her steroid days, although she has dropped a few pounds since then. Every time we go in for her well visit they give me a little brochure saying what a normal child her age should be doing developmentally. I get that is their routine, but seriously, do they have to hand that to me when they know Ruby is developmentally delayed? Like I need to be reminded that she is behind. Frustrating...
Charlie was supposed to get a shot at the doctor's office, but I asked them to take a look at him first because he was really stuffed up and it turned out he had an ear infection in both ears. So, instead of the shot we got antibiotics. He is still very congested and he is coughing some, but he is acting like he feels a little better. He is such a good little guy that I really didn't know he wasn't feeling good.

Tuesday I met a couple friends at the park in the morning and then in the afternoon a representative from Children's Special Health Care of MI came to talk to me to explain the program and answer questions. Basically this is a government organization that helps families who have kids with special needs with extra costs they might incure that insurance won't pay for. It is a blessing to have access to a program like this.
Tuesday night Mark watched the kids while I got a haircut, and saw a few friends. Thanks Mark! It was good to get out.

Wednesday Ruby had an EEG at Spectrum Hospital in the morning and then at noon both kids had cranial sacral therapy in Cascade- which is Grand Rapids area also- so I just hung out over there most of the day. We don't know what the EEG looked like yet. Mark went to the EEG with me but then he had to go back to work, so I handled the kids by myself for the cranial appointment. I was pretty proud that it went so well. I fed and changed Charlie in the waiting room at the hospital and I fed and changed Ruby in the van. I ate a bagel at the hospital and then grabbed a diet Coke at McDonalds for the road. We got to our cranial appointment on time, but unfortunately had to wait an hour because they were so behind. But, that is okay because we love our cranial sacral therapist. He is really helping both of my kids so I am willing to wait for a long time for their adjustments :)

Today Ruby and I are going back to Grand Rapids for her appointment at the Gerber Development Center; they check up on her development, refer us for therapy, order equipment Ruby needs, update reports for insurance...etc. Again, we are thankful to live so close to this great resource and support. This afternoon Ruby has physical therapy too so she will be tired out after her appointments.

Tomorrow the only thing I have on the calendar is a walk and play date with friends so we are looking forward to that!

Thanks for being patient about the updates that are only coming about once a week!

6 comments:

Keely said...

Hi Kelli! I found your blog awhile ago while blog-hopping but I don't think I've commented before. Anyway, I wanted to say I know how you feel about the "what a normal child should be doing" brochures. I hate getting those for Matthew, and I get baby center updates for both my kids and I still delete the ones for Matthew without reading them because even though I know what's going on with him I'm not at a place where I can look at them and be ok, ya know? So I just wanted to say you're not alone, and I also wish they didn't do that :-)
Keely Lehr

Dustin and Jenny said...

SUPERMOM!

Julie Linn said...

I agree with Jenny, you are a supermom. And, I'd like to call the doctors office and tell them to cut that out. You're absolutely right that it's insensitive.

The LaHuis Family said...

Kelli, It sounds like you are getting some great help. To wait an hour and not care really means a lot. Call sometime so we can have a playdate together;)

HollyMarie said...

Hey Kel, we are enrolled in Children's Special Health Care Services of MI for Bereket too. Be warned though; we've been enrolled for almost year and they have yet to make a single payment... getting a little anxious every time we get another statement saying that payment is STILL pending. I've heard they can take a while... but this is getting ridiculous!

Glad the cranial therapy is doing such good things for your kids. :)

Kelli TenHaken said...

Holly-Sorry to hear that is your experience with Children's Special Health Care. Thankfully, they have covered some stuff for us already and I think they are going to help cover some equipment we are ordering for Ruby. So far so good... I hope it works out for you soon,

Kelli