Ruby had a rough seizure day yesterday; she had double the amount of seizures she normally does. This is probably because the vigabatrin is out of her system. We are going to see what happens over the weekend. If they continue to increase we will probably head down the ACTH route again...yuck. Hopefully they calm back down again. Thankfully, she is happy and her muscle tone seems better then on the vigabatrin. Unfortunately the seizure activity caused her to have a rough night of sleeps, so we will see what today brings.
Ps. 91: 1-2
He who dwells in the shelter of the Most High will rest in the shadow of the Almighty. I will say of the Lord, "He is my refuge and my fortress, my God in whom I trust."
4 comments:
Lovely pictures!!! Sorry to hear about Ruby's rough day... :(
Check out all those teeth! Your kids are so cute! Praying that the doctors can find the medical answers that you need.
so sorry to hear about the increase in seizures....hope it calmed down over the weekend! "feet for the path"
blessings, Linda
Love the pics. They look so Happy! Hopfully the seizures will calm down soon.
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