A Few Tidbits

A few things swirling around in my head....

-Diapers-- Thanks for your advice and encouragement about diapers on my blog and facebook. I cannot find any coverage for them which is a bummer. For now, I am going to stick with size 7 which I can order on Amazon or get at Sam's Club.  After that it looks like pull-ups (if I can get them on her) might be our cheapest option or it is possible to order them through our medical supply company and at least save the tax with a doctor's note.

-Seizures-- We saw Ruby's neurologist last week. Because she is still having one or two seizures each week, we decided to increase meds again. I was hopeful this would make a difference, but sadly she had two seizures yesterday.  She was so exhausted and cranky afterwards, that Mark stayed home the rest of the day with her and I took the other kids out like planned.  It is so frustrating to watch her seize; I feel helpless to relieve her discomfort. It is hard when her needs separate us as a family.  Her seizures are also reeking havoc on her sleep, which is tough on Mark and I.

I am thinking we will let things be for another week or so and if she continues to have a couple more then I will call neurology again and talk to them about another increase or a change. Medication changes can be tricky; it feels like more of an art than a science.

-Vacation-- Tomorrow morning we are all heading to MN for the week to visit Mark's family!  I have some work to do to pack everyone up today, but I am really looking forward to some family time.  If you could pray that Ruby handles the trip and the new environment well I would appreciate that.  Also pray her seizures stay away this week.