Ruby's crib has been exchanged for a twin day bed. She doesn't sleep well at night and we are hoping that she will calm faster if we can quick lay down with her. Also, this will allow us to cuddle her without unhooking her ABR machine which is on every night. Last night she slept really well...we will see if that continues.
The reality of having a special needs child hits me at such crazy times. Getting rid of Ruby's crib shouldn't be a big deal, but it kind of makes me sad. Before we ever met Ruby, we prepared her nursery. I was so excited to paint the walls and get a matching bumper for the crib. We got a doll and a few stuffed bears as gifts that I couldn't wait to put in the crib. We set up the changing table with cute baskets filled with spit rags and diapers. The closet had a tub filled with toys on the floor so she could easily reach them. The bookshelf was overflowing with books...
All these preparations seem so silly now. Ruby never needed the bumper because she doesn't move much. She doesn't hug the teddy bear to fall asleep at night and she can't dump over the toys in the tub or take all the diapers out of the baskets. She has never reached up for me to get her out of her crib or thrown her pacifier overboard. All the adoption picture books I collected for her are sitting on her book shelf collecting dust. I guess moving the crib out of her room finalizes the fact that she never did those things.
Before we knew about Ruby, I pictured what transitioning to a big girl bed would be like for her. I figured we would talk a lot about it to prep her. I planned on getting cute new bedding and making her feel special with her new room. I knew she would probably get in and out of it a lot the first few nights and we would have to be tough about making her stay in her own bed... Again, all these thoughts seem silly now. Ruby doesn't even know she is in a new bed.
I guess the toughest thing about having a special needs child is all those little dreams and expectations that I once had for my daughter are gone. At each new stage I am again reminded of how different life will be. I try not to expect anything and I try to live one day at a time, being thankful for the joy that Ruby is and the progress she has made. But some days I miss the tantrums, the skinned knees and grass stains, the running in the house, the time outs, the apologies, the hugs... the little things I don't get to experience with Ruby.
11 comments:
Kelli... Oh... oh... oh.. I feel your heart in this post and honestly, my heart breaks for you and Ruby. I know you guys love Ruby so and I know that she is with you for a reason, but I can also see how you would miss all those things that kids do when they transition from babyhood to toddlerhood and beyond. It doesn't mean that you would trade Ruby for anything, but there is still sorrow in her missing out on those things and you guys missing out on those things with her. I think of you often and some day in Heaven we will all praise God with you to watch Ruby dance... Until then, I pray that you get to see many little miracles in her life. :) Sweet Ruby-cakes, you are one precious little girl!
Kelli, I appreciate your honest post. I often think of you and Ruby through the little things as well - and you mentioned so many ones clearly here. As I feel my next baby moving inside of me now, I often wonder if God will pick us to parent a special needs child too (which we wouldn't know yet) and how our lives would be different then. I see how God has given you so much strength in the last two years, yet it is so true that you need to grieve the losses as well. Ruby has a very special mom in you! :)
Holly said exactly what I was thinking and feeling. I could not put it into better words. I appreciate your honesty and know that your heart breaks for your little girl. Ruby is special and she will bless you in ways that no one can even imagine yet. My special needs kids at school make me smile every day even when they make no one else smile. Praying that the new therapy allows her to hold up her head and make improvements in her every day life.
Your thoughts are so honest and transparent. Thank you! It's so good to hear from your heart and to understand a little more.
Thank you Kelli, for sharing your heart and giving me a good reminder to be thankful for each moment, even the frustrating ones.
You are a very special mom Kelli. God picked you to travel down this road WITH. He's right beside you all the way, through every twist and turn. Even though you had planned on a different Ruby, God had this Ruby planned all along. Thank you for sharing your honest thoughts though, it's very humbling and it reminds me how I can't take things for granted.
Of course you grieve those things and that is so normal. It is good to say it outloud and be real. Your authenticity is a blessing.
Thank you for sharing your heart, Kelli. It's okay to feel the losses that you have experienced and will continue to experience with your sweet girl. You and Mark are incredible parents, Kelli. Praying for you today. We love you guys lots!
Oh Kelli and Mark,
there are no words.... just know that we pray for you daily!
feeling your pain...sharing your pain...love ya, Linda
Thanks for sharing such candid, honest thoughts Kelli!
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