The past couple weeks have been very up and down with Ruby. After we switched her dose of supplements a few weeks ago, her seizures increased and they seem to have stayed that way. Thankfully, she seems to come back from her seizures fairly quickly and they don't seem to affect her smiles at all, but of course we want them gone. I do think following the naturopathic route is right for her, but unfortunately, it takes months to see the kind of results we want. In the meantime, while she is detoxing or starting a new supplement, her seizures may increase. Even if we wanted to go back on meds, we don't really have any good options; none of the meds seemed to work for her anyways. Right now, we feel like we need to battle through this and hope that in a couple months she will be better off because of it. We are also doing neurofeedback, which should help decrease the seizures, but we haven't done enough of it to be effective yet. We do two 1/2 hour session a day; so far we have about 14 hours in and the doctor told us that they usually start to see small changes after about 20 hours, so hopefully we will see something soon.
Some recent tests have shown that Ruby has bacteria in her gut that needs to be worked on. She is always constipated and her bowels seem to be inflamed. Last night she seemed to be in a lot of pain from this, so today I will increase her bowel support supplements and hope that she is more comfortable today.
All of the emotions of dealing with Ruby stuff sometimes make me frustrated with God. Why can't he just fix her? It seems to me that would be so much easier. But, I serve a wise God who never promised that following Him would be easy. I strongly believe it was His will to place Ruby in our family and as tough as things are sometimes, He will continue to give us strength and direction to see us through. My Dad read from Psalm 34 in a worship service on Sunday night, and this part hit me....vs 8..." Blessed is the man who takes refuge in Him". BLESSED is the man who takes refuge in Him! God's presence, peace and strength is most evident when we are at our weakest. I will continue to take refuge in Him.
4 comments:
beautiful attitude, Kelli!
Kelli... if you ever want to do coffee or lunch or have our kids play I would love to hang out with you... I understand the ups and downs of this emotional rollercoaster and i too often with that God would just "fix" Alaina... hugs to you
You're heart and outlook are awesome, Kelli. I'm sure it's more challenging than anything you could have ever signed up for, but I was reminded this week that when we recognize our limitations, God loves to remind us that His provision and faithfulness are limitless. Praying for a tangible reminder of that for you guys this week. Much Love, Courtney
Hey guys,
It's Matt and I just wanted to check and make sure that Mark received my text message the other day. I realized after sending it that I wasn't sure you guys got text messages and since I never heard back from Mark. I wanted to make sure. If not, give Melissa or I a call and we can catch up a bit. You guys are doing awesome with everything. God bless you all!
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