We had Ruby's EEG this morning and again she did great; she slept through most of the test which makes the whole thing a lot easier. I called our neurologist at 4 this afternoon and he hadn't been able to look at the EEG yet, so we will hopefully hear something tomorrow. I am not very hopeful that the EEG will look good though because we have seen an increase in seizure activity in the last couple of days. The doctor did increase one more of her meds yesterday because of this, but so far it hasn't helped. I am really ready to take the next step because none of these meds seem to be working. There is a diet we can try that some kids have had success on or there are the steroid shots that can have nasty side effects, but also seem to have a 60% chance or so of getting rid of the seizures. We will wait and see what the doc says tomorrow. Thanks for contining to pray.
Life is a wild ride with unexpected twists and turns. Join us for that journey as we share what God is doing in our lives and as we keep praying He will give us feet to walk the path He has in store for us.
Thursday, December 18, 2008
No News Yet
The Smiling Picture I Promised :)

We had Ruby's EEG this morning and again she did great; she slept through most of the test which makes the whole thing a lot easier. I called our neurologist at 4 this afternoon and he hadn't been able to look at the EEG yet, so we will hopefully hear something tomorrow. I am not very hopeful that the EEG will look good though because we have seen an increase in seizure activity in the last couple of days. The doctor did increase one more of her meds yesterday because of this, but so far it hasn't helped. I am really ready to take the next step because none of these meds seem to be working. There is a diet we can try that some kids have had success on or there are the steroid shots that can have nasty side effects, but also seem to have a 60% chance or so of getting rid of the seizures. We will wait and see what the doc says tomorrow. Thanks for contining to pray.
We had Ruby's EEG this morning and again she did great; she slept through most of the test which makes the whole thing a lot easier. I called our neurologist at 4 this afternoon and he hadn't been able to look at the EEG yet, so we will hopefully hear something tomorrow. I am not very hopeful that the EEG will look good though because we have seen an increase in seizure activity in the last couple of days. The doctor did increase one more of her meds yesterday because of this, but so far it hasn't helped. I am really ready to take the next step because none of these meds seem to be working. There is a diet we can try that some kids have had success on or there are the steroid shots that can have nasty side effects, but also seem to have a 60% chance or so of getting rid of the seizures. We will wait and see what the doc says tomorrow. Thanks for contining to pray.
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12 comments:
oh my goodness! what an awesome picture! how can that now make you smile even with all that is going on right now. there are so many of us praying for you!
That is most precious! I need that one in print. Love you, Mom
Kellie: That is the sweetest picture of Ruby ever!!! What a beautiful smile!! I will continue to pray for her and for the results!!!
Such a CUTE picture! Praying her EEG went well!
What a beautiful little girl you have! Ruby is so blessed to have such amazing parents! It sounds like a thankless job (all the appointments and frustration), but know that God will give you strength and bless your work. Many prayers are being said on your family's behalf.
OMGoodness, is that adorable or what!?!? What a great capture Kellie!! We will be praying for better news.
What a Beautiful Smile!!!! Just want you to know we are praying for you! My daughter reminds us every night to pray for Baby Ruby :-)
What a beautiful picture Kelli! Waiting with you for news.. praying for Ruby's health and that something will have a positive impact soon!
Only about 15 more days until this Grandma gets to love on that adorable face!! I cannot wait!! She is such a gift to this family!1
love Mom
oh wow that is just amazing. LOVE HER, I REALLY REALLY DO!!!
So precious! She is beautiful. Hope you have a wonderful Christmas holiday. It was great to catch up last night. Take care and keep in touch. Love you and miss you all!
This is the most beautiful picture! It makes me smile:)
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