Zonegran

Ruby has been back on seizure meds for one week so far and things have gone fairly smoothly.  The med she is on (Zonegran) takes awhile to get to full effectiveness; we start her on a low dose and then slowly, over a month, we increase it until we reach her theraputic dose.  So far, we haven't seen much of a decrease in seizures, but I do feel like she has been more alert and responsive.  We just increased her dose last night so we will keep watching and waiting to see if this will help her.  Thankfully we haven't seen any weird or nasty side effects to this med; I hope that remains the case as we continue to increase it. 

We are meeting with the neurologist on Tuesday afternoon; this is our rescheduled appointment from when he was sick last week.  I have many questions to ask him about Ruby's future treatment and prognosis so I am anxious to talk to him. We want to know things like..... what other medications we should try?  Are Ruby's seizures more focalized than they were on the last EEG? (which means maybe we could look at surgical options) Would it be worth trying the ketogenic diet again now that she can eat pureed food instead of just formula? .....etc.

Your continued prayers for direction and wisdom are very appreciated! We have been feeling God's peace in the midst of this discouraging news and He does continue to be faithful to our family.