Wednesday, November 5, 2008
Disheartened
Ruby had a rough day again; today she had the longest seizure yet, even though the doctor increased her meds Monday night. This is very disheartening; the longer the seizures go on, the more damage may be done to her brain. We added another pill to the mix tonight and the doc is ordering yet another med from Canada to start in a few days. He was pretty concerned to hear that her seizures were not getting any better. Ruby is very sleepy from the medicine; when she is awake she is fussy because the pills make her stomach hurt. I love Ruby from the bottom of my heart but it is hard for me to really enjoy her right now because she isn't awake much and when she is awake she isn't very content. I don't really know her personality yet because so much of what we have experienced has been while she was sick. We are very frustrated and having a hard time swallowing the fact that this might be reality for us for awhile. We are desperately hoping that these next meds work very soon. If they don't work, our next step would be steroid shots that can have nasty side effects. Please pray!
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19 comments:
Kelli, I am so very sorry to hear that the meds so far are not working. I am praying hard for you and Mark and Ruby. I pray that God would step in NOW and intervene in a big way... (((HUGS))) friend!
Praying, Kelli!
we are so sorry to hear that things arent improving. we will continue to pray even harder! please let us know if we can do anything!
I have been a lurker on your blog (I have no idea how I came across it anymore:)), but I wanted to come out of lurkdom tonight to let you know that we are praying for you guys over here. Please know that the story of your daughter is impacting even strangers.
dawn
You are soooo in our prayers. Little Ruby is in our prayers as well as you and Mark. God is going to see you through this all, He promises to.
Marisa
I am so sorry, I can't even begin to imagine how hard this must be for you. I will continue to pray that Ruby will respond to the new medication and that you are Mark are able to get some rest.
I, too, have been lurking on your blog for awhile now. Just wanted to let you know that I'm praying for you and your little gal and hope that you get some much sought after answers.
My heart is heavy after talking to Sharon tonight and now reading your blog. Ruby is God's precious little one - born so far away and yet now in your arms to love and care for and protect as best you can. I can't imagine how difficult this must be for you, but so many prayers are with both of you and with little Ruby. I love the last picture you have posted of her on your blog. She is so beautiful. God, protect her as you hold her, Mark and Kelli in the palm of your hand.
My wife Gina (http://hale.adoptblogs.org) has been following your blog for some time now and I started reading this morning. Definitely sorry to hear about Ruby, the ongoing seizures, and the change in meds. Just wanted to say hang in there, especially while you're in the time when the meds are making her sleep so much. We fostered a baby a few years ago who had been abused with a bad head injury. She was on medication with similar drowsy effects and while it was difficult to have her sleep so much, it was great to allow her to heal and the end of it, with her coming out of the medications was great and exciting to see her open up as the medications were slowly and eventually backed away. We'll be praying that the next round of medications will help her heal the way needed. Looking forward to hearing how those prayers will be answered.
We will keep praying! We love you and miss you!
I have also been visiting your blog, and following along with your dear Ruby. I'm praying for quick and thorough healing! God is mighty to save!
Kelly, my heart is aching for you right now. This must be so difficult for you and your DH...to watch your precious angel hurting. You are all in my prayers. You are such a great Mom and God has a plan for all of you!!!
Hi Mark and Kelli. We are praying for all of you right now. "The Lord your God is with you. He is mighty to save. He will take great delight in you. He will quiet you with his love." (Zephaniah 3:17)
Lots of love and prayers from your family in Canada!
The Huygen's
You guys and Ruby are in our prayers. God knew that Ruby was going to need a special home with loving parents that would do anything to help her. I don't think that He could have chosen a better home and parents to place her with!
We are so sorry to hear this! We will keep on praying! We are so thankful that Ruby is in such a loving home with great parents.
I'm so sorry to hear about Ruby. Your family has been in my thoughts and prayers. I've been debating back and forth, and have finally decided to share the blog of another adoptive mom I know who's child had infantile spasms.
http://3tboys.blogspot.com/
I'm sure if you left her a comment, she could email you. Please be forewarned: her child had a severe form of infantile spasms. But I thought she might be able to help, having been through it already.
God bless,
Michelle Newman
Kelli, I don't know what to say. It must be so hard to love her so much and watch her go through this. I am sorry. I will be praying for a quick turn-around.
Kelli--I haven't had time to write or send you a note. But know we check your blog everyday and we haev been praying so fervently for your family. Now that we are parents I can now empathize at how much you worry! That is not easy and I'm so sorry that you've had to deal with so much. Ruby is so adorable and you WILL know her soon! I'm sure the dr's are doing whatever they can and everyone is praying! The power of prayer is incredible and look how far Ruby has come so far with the grace of God.
Love you all!
(I hope you're able to take care of yourself! I'm excited to hear more about your baby boy!)
Prayers are with you all. That picure is so CUTE!
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