The visit to Detroit went well on Friday. The doctor we saw, Doctor Chugani, specializes in epilepsy, specifically infantile spasms. He saw three other kids that have what Ruby has on Friday alone! We feel confident that he is very knowledgable. He gave us a new medicine to try and he ordered at 24 EEG and a PET scan for Ruby. These tests are hopefully going to be done next week sometime. To have these tests we will have to check Ruby into Detroit Children's Hospital for at least an overnight stay. The EEG and PET scan will give him more information about Ruby's brain and her seizures; he wants to find out what part of the brain Ruby's seizures are coming from so he can see if they could be fixed by surgery. If they are coming from one specific focal point, then he can remove that small part of the brain and the seizures will go away. If they are not coming from a focal point, or if there is more than one focal point, then she will not be a candidate for surgery and we will have to continue to try to treat her with meds.
We are praying that the doctor will find a focal point on Ruby's EEG so that she will be able to have surgery that will stop her seizures. Again, there is hope in a new test and new meds.... we will have to wait and see what God has in store for this next step.
3 comments:
Yes, "wait and see" is what we'll all do with you. Keep me posted when you know what days I can be a help or someone to chat with.
Wow, what a day for you. Praying!
I am glad that your appointment went well. Hopefully you will get the results that you want from the tests!
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