Once again we are in the hospital, this time with Charlie. He has been vomiting most of the weekend and Sunday night he developed a cough. We took him in on Monday night for a stomach ultrasound and Tuesday morning for an upper GI study. These tests showed that he has significant reflux and I also found out that he lost 4 ounces over the weekend. So, I called his doctor and she wanted to see him. She discovered that his heart rate was a little elevated and she was worried about his lungs, so she admitted us to Holland Hospital. Here, we discovered that Charlie has RSV. This is a viral infection so they won't give him any meds for it, but if the oxygen level in his blood drops they will put him on oxygen. They are also going to give him nebulizzer(sp?) treatments to see if that helps. We are hoping that in a few days he gains weight, loses the cough and we can go home- again.
As far as Ruby is concerned, we had our 6-hour video EEG on Monday. My mom went with me and friend from church volunteered to watch Charlie- which was nice. Unfortunately, we did not recieve any postive news from the doctors. It appears that Ruby's seizures have developed into a different type of seizures. The doctors need to decide what the best medicine is for these. They were not optimistic- they told us that she will likely not outgrow these and there is a much lower chance of her developing beyond this point if we do not get these under control soon. We are hoping to hear from the doctors before the week is over with the new plan for her meds.
Needless to say, we are sick of hospitals and bad news. We continue to think things cuold not get worse.....but they do. Who knows what the next week will bring.
17 comments:
You are in our prayers! We love you and miss you!
-Kyle & Katie
I do not even know what to say....I wish I could just give you a big hug and make it all go away!! My heart breaks for all that you have been through this past year!!! Praying that God's will be done and that he continues to carry you through this valley.
We love you guys and continue to pray for you.
~Chad and Kim
Good grief, I am so sad that you all can't catch break. I will keep praying for you all! If you need anything, just shoot me an e-mail.
{hugs}
Your family is in our prayers!
So sorry for your disappointing news. I pray some good news is around the corner. *We're a fellow Katelyn's Fund family/Ethiopian adoptive family. Take care.
"For I know the plans I have for you" declares the Lord. Jeremiah 29:11. During my many hospital tours, chemo clinics and all kinds of tests I would cling to this verse. God knows the plans because He made them. There are plenty of days that I would like to make the plans my way but when I give up and realize that God's ways are the right ways, life goes much easier. God can use anything in life for His glory. You are in a very hot fire right now but I can see that you will come out wiser, stronger and better because of that heat. You are in our prayers.
Brian & Kristi Rogalske
Praying for you guys, I am sorry to hear that Charlie is now in the hospital, once again I wish I could be there to help you out! Love you!
...hope it helps you to know that the body of Christ is surrounding you and will help carry the burdens....
Crying over here this morning... It's high time for some good news for you guys...
Charlie, Ruby, Kelli, and Mark
You are in my thoughts and prayers. May you be blessed with healing and strength.
Oh, no... for both your babies. I am praying for you guys.
Jesus loves you this I know, for the Bible tells me so. Little one to Him belong, they are weak, but He is strong.
I keep humming this song over and over as a prayer your precious little ones.
We are so sorry for this valley that you all continue to be in. We will continue to pray for both of your little ones and for Mark and yourself. The King in holding all of you in His hands and He is not getting off the throne! The Schutte's
Mark and Kelli,
Your last comment that you keep thinking things can't get worse, but they do really resonated with me. We continued to get bad news from the time Lis was 2 months till two years old. Even though all the problems were not all resolved after that, we have come to terms with a "new normal". One thing I learned during that time is not to get too down when things were hard, because they wouldn't always stay that hard and that when things were good not to think you were past it all because you would be disappointed. It saved a lot of emotional energy. We will pray for healing, effective medications, spiritual and emotional energy for you as parents. We pray too that you will soon come to a "new normal". Boring is good, isn't it?
Steve & Shelly Boeve
p.s. we were very touched watching the baptism of your beautiful children. The pride and love you have for them was so evident. They are very blessed to have you two as parents!
Praying for you guys. I know I have no words to make it all better, but God does know just what you need right now. Praying He will meet all of your needs. Love, michelle
We keep praying for your whole family...scary stuff though, I can't imagine it.
Our paths may never meet, but I wanted to reach out and let you know that I hold your children and you in my thoughts. I had the privilege of meeting your daughter at the hospital in Ethiopia in September and by some wonderful twist of fate, found your blog and have been able to follow her journey with you. Best wishes to Ruby, to Charlie and to the both of you. May happy news find you soon.
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