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Friday, May 8, 2009
EEG Results
Ruby's EEG showed no signs of her spasms!!! She usually has a seizure pattern on her EEG, even if she didn't have a seizure during the EEG and this time it was no where to be found! We are very excited about this. She did have a few little muscle jerks (called myclonic jerks) when she was falling asleep, but the doctors are not to worried about these; they don't cause severe developmental problems like the spasms do. She also has some weird activity on the left side of her brain that show the doctors she may be at risk for having seizures in the future, but this is something we are already very aware of. For now, we are rejoicing in the fact that the spasms are gone on the EEG!! Our neuro is being very cautious with the ACTH injections and he decided to keep Ruby on one more week of the full dose before we start the wean. I wish we could wean now, but I would much rather be careful and make sure the seizures don't come back. So, overall, this is the news we have been waiting for 8 months to hear!! Thank God with us that the seizures are gone right now and please pray they never come back!
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13 comments:
AWESOME NEWS!!!!!!! LOVE YOU GUYS!!!
Praise God!!! I am so happy to hear this can't even imagine how elated you guys are!
AMAZING!!!!! I can not even imagine your joy. Give Ruby a big squeeze for me : )
That is great news!!!
Praising God with you.. it's been a long 8 months for you guys! Praying the weaning goes well and the seizures STAY FAR FAR AWAY from here on out! :D
I LOVE that news. Way to go, Ruby!
Hallelujah! Finally a solution... praying that they stay far, far away forever!
GREAT NEWS! We join you in praising God for His faithfulness. We love and miss you guys!
Tears in my eyes, praise God for such great news!
What great news! Praise God. Happy Happy Mothers day!
Joining in your celebration of the present!
Joining in your prayers concerning the future!
Larry, Linda gayle,and Chris
Kelli, sounds like this month was the month we both got the news we've been waiting EIGHT months to hear! Praise God! I will email you soon!
That is such WONDERFUL news!!!
I can't remember...is Ruby on any other seizure medication besides ACTH? Do you have plans on keeping her on a seizure medication after the ACTH wean?
I hope and pray that you see some great progress in her development now that she is seizure free. I am so happy for you and your family.
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