I am excited to say that Ruby has had a great couple of days. Her seizures have continued to go down this weekend and because of that she seems more alert and she is babbling more then ever before. Last Wednesday, when she was off the steroids she had 40 seizures and yesterday we only counted 6!! We are being cautiously optimistic that God is going to use these ACTH injections to kick these seizures!!! I still hate giving the shots, but it is getting easier to do every day; I did get a break too because Mark gave them over the weekend.
Charlie continues to do well. He weighed 9 lbs 1 oz on Saturday so he is eating like a champ! He sleeps pretty good at night too; he only gets up once to eat, usually between 4 and 5am.
We are praising God for good news. Thank you for all of your prayers. Please keep praying hard that the seizures will be gone for good this week!
7 comments:
About time you have something to cautiously optimistic about. :)
Praise God you are seeing improvement in both beautiful kiddos! Praying this continues and gets better and better!
My daughter has been praying "that Ruby gets better so she can teach her brother things, even though she is still a baby" ;-)
KELLI!! That is just SO WONDERFUL!! Tears of joy filling my eyes, and my heart is just full of wonder at our wonderful, healing God!!! So glad that both of the kiddos are doing well, you are getting some rest, and that the sun is shining a bit brighter!! :)
Thank You God for continuing to answer our prayers for this family!
We're praising God with you! I love this kind of post!
Yay for fewer seizures! Praying that they stay away and Ruby shows more of herself every day.
Yea God for some encouraging days!
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